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If you are having any problems posting threads plz message Kate. since latest update we have had 6 members with problems, sorted those but yet to find the problem.
RIP I couldn't even imagine what his parents went through and agree that this should be a test that should be done when babies are born. If caught earlier there can be steps taken to help the little ones live a somewhat healthy life.
I hope the AMA takes note of this preventable death and changes the legislation to include this test for future generations. Too young to die. RIP little one.